Published by Sean on 28 Jan 2008 at 05:19 pm
Inconsolable
There is absolutely nothing more frustrating than being unable to ease the woes of an inconsolable patient. Especially hard is the moment in which I, as a nurse, have to stand at the end of a patient’s bed, my head hanging low, voice soft and defeated, and say, “I’m sorry, there’s just nothing more we can do. We’ve tried everything.”
In this case, the culprit was restless leg syndrome.
Symptoms of Restless Legs Syndrome
People with RLS have strange sensations in their legs (and sometimes arms) and an irresistible urge to move their legs to relieve the sensations. The sensations are difficult to describe: they are not painful, but an uncomfortable, “itchy,” “pins and needles,” or “creepy crawly” feeling deep in the legs. The sensations are usually worse at rest, especially when lying in bed. The sensations lead to walking discomfort, sleep deprivation, and stress.
From WebMD: Read more
This gentleman was on incredible doses of many drugs. His cocktail would easily have depressed my respirations enough to leave me comatose and most likely dead. By 04:00 I had given him the following: 0.125mg Mirapex, 15mg Zopiclone, 4mg Ativane, 5mg Buspirone, Olanzapine, and 30mg morphine.
He was still screaming though. His moans could be heard throughout our unit which should have been completely silent–except for the quite drone of the radio, the hum of the idle computers, and the scratches of our pens on our charts.
His screams were always followed by the BANG BANG BANG BANG BANG of his legs slamming against his bed as he despiritely tried to relieve the sensations in his traitorous legs.
Then the call bell would ring, “please PLEASE….somebody help me….I can’t do this anymore…please!”
“I’ll get you some more ativan and morphine.” Is all I could ever say.
Every time I would pump him full of medications through his peg tube, I couldn’t help but notice his sunken eyes and desperate expression. He had lost a lot of weight over the last several days. He had been assigned to me for three nights in a row and in that time he’d fallen asleep for thirty minutes: and day shift reported that he hadn’t slept a wink for them. You could see the sleep deprivation in the dullness of his eyes.
Compounding the issue was his cognitive abilities. He had the coping skills of, I would guess, a five-year-old. He didn’t have the ability to calm himself. He was unable to develop strategies for himself to work through the pain and suffering of his never-still legs. He looked outward to us, his nurses, as the sole group of people that could help him…but we couldn’t.
I kept wishing I could consult an anesthesiologist for the sole purpose of completely sedating and paralyzing him; perhaps even for a few days (wishful thinking, I know). I wanted to walk into his room and see him sound asleep and at peace. I would have given anything to hear him say, “I slept so well last night.”
As for now (I have a few days off–he’s in another nurse’s hands), the plan is to keep increasing his medications. The idea is that there must be a dose/cocktail of narcotics and neuro/psych meds that will get him some relief and perhaps even some sleep. Or, maybe, I will witness the dangerous reality that sleep deprivation really can kill you.
It’s hard to reach a point where you admit that you are entirely helpless. After all, when we can’t help people, doesn’t that signify our failure as a health provider? Are we not here to ease people’s suffering? I have solutions for most issues: can’t pee then foley, emesis then NG tube, pain then narcotics, no pulse then CPR. But this situation completely defeated me.
Every time I would walk away from him I could hear his cries, “please please PLEASE” BANG BANG BANG “Help me! Please! I can’t do this!” BANG BANG BANG. I could feel his frustrations throughout my body; I felt ragged and raw; my emotional barriers were worn out.
It burdened me that I could not console the inconsolable.






Ivory on 28 Jan 2008 at 8:09 pm #
What about an epidural?
Grand Rounds: Volume 4, No. 19 // Emergiblog on 28 Jan 2008 at 9:33 pm #
[…] Nurse Sean describes the emotional pain of watching a patient suffer and being unable to help in Inconsolable. […]
Sean on 28 Jan 2008 at 9:51 pm #
Ivory: an epidural is a great idea and probably would have worked great. However, he’s well enough to go home (minus this issue), so finding a strategy that would work at home long-term.
He was in for a colectomy and VAC dressing, not specifically for the restless legs.
GM on 29 Jan 2008 at 11:09 am #
Can you get a massage therapist in to massage his legs?
Barbara K. on 29 Jan 2008 at 4:17 pm #
What a dreadful situation for you and the patient. I am sorry you (and he) had to go through this.
I too have suffered with unreachable physical pain. I think it’s so important for health care professionals to know that even when they can’t make the physical pain go away, they can help to lessen the suffering. How? With attentiveness, with gestures, with words. Patients in pain fear not only endless pain, but also abandonment.
It does make a difference to have the medical person respond to your calls, touch your shoulder, and say something like - “I can see how awful this is for you, and I am sorry I can’t make it stop right away. I won’t forget you, I’ll check in on you in an hour, and we’ll keep trying.”
Your expressed compassion may soothe the heart even if it can’t eliminate the pain. And when the heart is calmer, the patient may have more resources available to try to manage the pain.
This may not have worked for this particular patient, but I know my doctors’ and nurses’ outreach and caring helped me get through many pain spikes that pills couldn’t touch.
Nickie on 31 Jan 2008 at 8:54 pm #
I’m a person with chronic pain because of Reflex Sympathetic Dystrophy. I can relate to this patient’s struggles, and wanted to say that the fact that you care makes a huge huge difference. Sometimes, just knowing that the people around me will keep trying, and that they believe me is what matters. Conversely, those who don’t believe me cause a lot of pain emotionally, too, which can increase the physical pain. Thank you for caring about your patient. He may not be able to say it, because of the problems he’s going through, so I wanted to say it.
anon on 12 Feb 2008 at 1:20 am #
Has anyone thought that this patient might have nutritional deficiencies that don’t show up in blood tests (CBC, CMP)? I know that I had some routine blood work done last year that found that everything (H&H) was WNL except my hemoglobin was slightly low (12.3). I was having these strange spasms occasionally when I swallowed pills, which was not typical for me, since I could take four 200mg ibuprofen all at once (or the large 800mg) and I’ve been like that since I was a kid. Started reading up on nutrition one day and lo and behold, I read that iron deficiency can cause dysphagia. Started taking iron supplements in addition to my once a day multivitamin and voila — in a month, no more spasms when swallowing and they haven’t returned.
When my mom was bothered by restless legs syndrome, I looked that up and it can be caused by magnesium deficiencies. Got her some Mg supplements. When she takes them regularly (after a few weeks), no more restless legs. When she forgets or slacks off, the restless legs come back.
Not everything has to be — or can be — solved by pharmaceuticals. Sometimes the body just needs what it needs, and since every body is different, maybe this man’s body needs more. Or perhaps he takes meds that imbalance his magnesium, calcium, or potassium — all deficiencies that can cause muscle cramps and twitching.
Just a thought.
Sean on 12 Feb 2008 at 8:45 am #
Anon: His nutrition was being followed very closely by a dietician and had been an ongoing problem. Hy was VERY dysphagic and had a peg tube in which we administered feeds. His had daily bloodwork that would have shown deficiencies.
Leah on 06 Apr 2008 at 4:07 am #
I have been getting pins and needles pain through out the upper body mostly. starts with the arms then expands towards chest. sometimes it flows towards legs. but this only occurs when my its time for bed, or to take a nap. or just when body is idling. do you have any suggestions?